About the Campaign

Melanoma Just Got Personal was developed to help patients and supporters understand advanced melanoma and raise awareness to help those fighting for their lives.

Knowing your opponent is a critical step in planning your personal fight against advanced melanoma and it can be hard to fight an opponent you don’t truly know or understand.

Melanoma Just Got Personal — an initiative of Novartis Oncology; pro football legend, Hall of Famer, and former melanoma patient Troy Aikman; and AIM at Melanoma, the Melanoma International Foundation, and the Melanoma Research Foundation — aims to help people living with advanced melanoma learn more about their disease, raise awareness of this rarely discussed skin cancer, and rally support for those fighting for their lives.

This devastating disease wants us to retreat and hide, but with recent advances, it’s now possible for us to go on the offensive and battle advanced melanoma. If you are currently fighting advanced melanoma, or if you’re a caregiver or loved one, you’re not alone.

Click below to view Troy Aikman and others talking about how Melanoma Just Got Personal  for them.

 

Advanced Melanoma Awareness: The Markings

Know your opponent. Mark your opponent.

Advanced melanoma (unresectable or metastatic) may be a tough opponent but it’s time to show that you can fight back. Now that you’ve taken the time to learn about your disease, show us how you mark your opponent. If you have advanced melanoma, choose the marking below that represents your form of the disease. If you are caring for, or know, someone with the disease you can show your support by choosing the supporters’ mark.

BRAF+

braf+ marking
The double-crossed plus sign stands for BRAF+ advanced melanoma.

Other Mutation or Wild-Type

other mutation or wild-type marking
If you don’t have the BRAF mutation, you may have a less prevalent mutation form, such as NRAS, c-KIT, or no known mutation. Melanoma is one of the cancers with the highest frequency of mutations, and research efforts are continuing to better identify and understand additional mutations.

Supporter

melanoma supporter marking
If you don’t have advanced melanoma, you can be a Supporter like Troy. People fighting advanced melanoma need support from many allies to stand ready and show this disease they're not about to back down in this battle.

 

The first line is reminiscent of athletes preparing for battle and keeping the sun out of their eyes while the second line underneath represents the critical role supporters play to help hold up those battling this disease.

Put on Your Markings to Raise Melanoma Awareness

  1. Find your marking and re-create it on your own face using sports paint, black makeup or anything else that will do the trick. Please avoid the use of permanent marker, nonwater soluble solutions, as well as any other materials that may be dangerous to your skin. If you need some help you can download a stencil of your marking by clicking here.
  2. We’ve put the markings on the face to signify that we are facing advanced melanoma head on. Just as melanoma is personal, how you mark your opponent can be personal to you. Be it your arm, your face, the back of your hand or your ankle, just show us how you mark your opponent.
  3. Take a photo of yourself wearing your marking to show you are ready for the fight!
  4. Submit your photo, along with your first name and e-mail address, by uploading it to the photo gallery here. Caption your photo in a way that best represents you. Share your photo on your social media channels, declare your fight against melanoma and ask others to do the same!
  5. Use the hashtag #MelanomaJustGotPersonal  along with your personal message.

 

Melanoma Just Got Personal  Stories

Troy’s Story: Being Blindsided by Melanoma

John’s Story: Knowledge Is Power, Know Your Mutation Status

Louanne’s Story: Life Uninterrupted

Donya’s Story: Through the Eyes of the Caregiver

Dr Richey’s Insights: The Personalized Nature of the Disease

Nurse Molly’s Perspective: Your Support System

Overview of Campaign Supporters

The following advocacy partners are leading the fight against melanoma.

aim logo

AIM understands that breakthroughs happen when you engage the right people, promote innovative ideas, and provide access to cutting-edge research tools and resources. AIM at Melanoma is globally engaged and locally invested in advancing the battle against melanoma through innovative research, legislative reform, education, and patient and caregiver support.

 

mif logo

The Melanoma International Foundation (MIF) is a 501(c)(3) nonprofit organization created to provide the scientifically sound guidance and support their founder could not find when she was diagnosed with melanoma. Their mission is to develop personalized strategies with patients so they may live longer, better lives.

 

 mrf logo

The Melanoma Research Foundation (MRF) is the largest independent organization devoted to melanoma. The MRF is committed to the support of medical research in finding effective treatments and eventually a cure for melanoma, as well as serving as an active advocate for the melanoma community. Its online forum — the Melanoma Patients Information Page (MPIP) — is the oldest and largest community of people affected by melanoma.

 

The mission of the Melanoma Research Alliance (MRA) is to end suffering and death due to melanoma by collaborating with all stakeholders to accelerate powerful research, advance cures for all patients, and prevent more melanomas.

 

The Skin Cancer Foundation has set the standard for educating the public and the medical profession about skin cancer, its prevention by means of sun protection, the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating the world’s most common cancer, now occurring at epidemic levels.